Comments for Joannespangle's Weblog http://joannespangle.wordpress.com Enigmatic Thoughts of a Paradox Fri, 05 Dec 2008 00:11:53 +0000 http://wordpress.com/ hourly 1 Comment on Mortality and Dreams by Jilly http://joannespangle.wordpress.com/2008/07/26/mortality-and-dreams/#comment-17 Jilly Fri, 05 Dec 2008 00:11:53 +0000 http://joannespangle.wordpress.com/?p=18#comment-17 I'm a poet & have EDS too. Good luck with your writing. I’m a poet & have EDS too. Good luck with your writing.

]]> Comment on Long lost update by Writing Frontier http://joannespangle.wordpress.com/2008/10/21/long-lost-update/#comment-15 Writing Frontier Tue, 21 Oct 2008 03:11:00 +0000 http://joannespangle.wordpress.com/?p=59#comment-15 Here's a little encouragement for you. See Writing Frontier's "When it rains" at http://writingfrontier.com/2008/09/06/when-it-rains/ Here’s a little encouragement for you. See Writing Frontier’s “When it rains” at http://writingfrontier.com/2008/09/06/when-it-rains/

]]> Comment on Mortality and Dreams by Melissa Morris http://joannespangle.wordpress.com/2008/07/26/mortality-and-dreams/#comment-14 Melissa Morris Sun, 24 Aug 2008 01:10:54 +0000 http://joannespangle.wordpress.com/?p=18#comment-14 Randy Pausch has been an inspiration to so many people. Keep following your dreams and your goals and live each day to the fullest...it is all any of us can do. ~Melissa :) www.melissamorris.wordpress.com Randy Pausch has been an inspiration to so many people. Keep following your dreams and your goals and live each day to the fullest…it is all any of us can do.

~Melissa :)
http://www.melissamorris.wordpress.com

]]> Comment on Mortality and Dreams by EDS Alert Newsletter http://joannespangle.wordpress.com/2008/07/26/mortality-and-dreams/#comment-12 EDS Alert Newsletter Tue, 12 Aug 2008 05:46:58 +0000 http://joannespangle.wordpress.com/?p=18#comment-12 [...] • Blog: Joannespangle’s Weblog [...] [...] • Blog: Joannespangle’s Weblog [...]

]]> Comment on Mortality and Dreams by joannespangle http://joannespangle.wordpress.com/2008/07/26/mortality-and-dreams/#comment-11 joannespangle Sun, 27 Jul 2008 20:42:56 +0000 http://joannespangle.wordpress.com/?p=18#comment-11 I have a hybrid form that exhibits elements of nearly every type. Hypermobility type (formerly type III) Advanced premature osteoarthritis with chronic pain Heart valve problems (mitral valve prolapse) Classical type (formerly types I and II) Fragile skin that bruises or tears easily Slow and poor wound healing Heart valve problems (mitral valve prolapse) Vascular type (formerly type IV) Fragile blood vessels Thin, fragile skin that bruises easily Veins visible beneath the skin Kyphoscoliosis type Progressive curvature of the spine Fragile eyes that are easily damaged or ruptured Increased risk of rupture of medium-sized arteries I also have flexible joints that extend beyond the normal range of movement and dislocations of shoulders, knees, fingers, hips, wrists, and collarbone. I can feel my body deteriorating. I’ve known for a long time that I was getting weaker, but I still try to do as much as I possibly can. My knowing my time is probably short makes me all the more determined to do everything I possibly can. If I’m going to burn out soon, I may as well burn as bright as I can. I’m going to be a beacon in this world, even if it really is the last thing I do. I have a hybrid form that exhibits elements of nearly every type.

Hypermobility type (formerly type III)
Advanced premature osteoarthritis with chronic pain
Heart valve problems (mitral valve prolapse)

Classical type (formerly types I and II)
Fragile skin that bruises or tears easily
Slow and poor wound healing
Heart valve problems (mitral valve prolapse)

Vascular type (formerly type IV)
Fragile blood vessels
Thin, fragile skin that bruises easily
Veins visible beneath the skin

Kyphoscoliosis type
Progressive curvature of the spine
Fragile eyes that are easily damaged or ruptured
Increased risk of rupture of medium-sized arteries

I also have flexible joints that extend beyond the normal range of movement and dislocations of shoulders, knees, fingers, hips, wrists, and collarbone.

I can feel my body deteriorating. I’ve known for a long time that I was getting weaker, but I still try to do as much as I possibly can.

My knowing my time is probably short makes me all the more determined to do everything I possibly can. If I’m going to burn out soon, I may as well burn as bright as I can. I’m going to be a beacon in this world, even if it really is the last thing I do.

]]> Comment on Mortality and Dreams by bugsmom http://joannespangle.wordpress.com/2008/07/26/mortality-and-dreams/#comment-10 bugsmom Sun, 27 Jul 2008 16:37:14 +0000 http://joannespangle.wordpress.com/?p=18#comment-10 I just wanted to pop in and make sure that people know that EDS in general does not effect life expectancy. There are 6 sub-types and the only one that is documented to do that is vascular. You never know who might read this and suddenly think someone they love or even they are going to live a short life. Good luck with your dreams, and think positive! If you'd like to read about another EDS'er who is about your age and laughs at life, go to http://girldislocated.blogspot.com . It's my favorite blog. :) I just wanted to pop in and make sure that people know that EDS in general does not effect life expectancy. There are 6 sub-types and the only one that is documented to do that is vascular. You never know who might read this and suddenly think someone they love or even they are going to live a short life.

Good luck with your dreams, and think positive! If you’d like to read about another EDS’er who is about your age and laughs at life, go to http://girldislocated.blogspot.com . It’s my favorite blog. :)

]]> Comment on Mortality and Dreams by deanjbaker http://joannespangle.wordpress.com/2008/07/26/mortality-and-dreams/#comment-9 deanjbaker Sat, 26 Jul 2008 15:32:20 +0000 http://joannespangle.wordpress.com/?p=18#comment-9 good to see these dreams, hope you continue to write more good to see these dreams, hope you continue to write more

]]> Comment on Are we learning or merely being taught? by amayala http://joannespangle.wordpress.com/2008/06/11/are-we-learning-or-merely-being-taught/#comment-6 amayala Wed, 11 Jun 2008 22:08:24 +0000 http://joannespangle.wordpress.com/?p=14#comment-6 You have some interesting comments here. I'm sure Mark Twain would agree with you. :-) He was very much a fan of natural learning and common sense. How many times have I taught a student who was academically brilliant but didn't have much common sense? You have some interesting comments here. I’m sure Mark Twain would agree with you. :-) He was very much a fan of natural learning and common sense. How many times have I taught a student who was academically brilliant but didn’t have much common sense?

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